Understanding the level of caregiver burden on caregiver of school attending cerebral palsy children at william and marie taylor school crpbangladesh

Abstract

Cerebral palsy is chronic motor disability with huge economical burden as well as creating fatigue on caregiver arising in early childhood. Caregiving burden is essentially characterized by an understanding of overload everyday care; support on child’s feeding to every behavior those results from an imbalance of perceived demands and resources, which may ultimately lead to feelings of helplessness and one, can perceive the burden. The main objective of this study was to identify the level of caregiver burden on school attending cerebral palsy (cp) children. Research methodology was a descriptive cross sectional study design was implied to conduct the research as this study aimed to evaluate the extent of caregiver burden of caregiver of school attending CP children. The total sample included was 54 respondents. Outcome measure was semi-structured self prepared Caregiver Burden Score Scale (CBSS) questionnaire. Data was analyzed using spss (statistical package of social science) 16.0 versions for descriptive statistics, chi square test, Crosstab to test the association between different study variables. The mean age of participants was mean age (µ=32.91 years and (SD= 6.094). Mean score of caregiver burden was 2 near to moderate level and standard deviation of score was 0.336. There was only association between number of child and caregiver burden score (0.044) which was less than the p-value (0.05). This study concluded that caregivers are severely affected on coping with environmental situation while transferring cp child to school. Key Words: Cerebral Palsy, caregiver, burden, environmental domain, disable child.